Decision making and end-of-life care for patients and their caregivers with left ventricular assist devices
Publications
Carvedilol for the Treatment of BPH in Patients with Heart Failure? Submitted 3/11 to Journal of Cardiac Failure (currently in review). Additional authors: Dr. JoAnn Lindenfeld, Dr. Robert Page, and Dr. Simon Shakar,
Rohrer CK, Page RL 2nd, Shakar SF, Lindenfeld J. Carvedilol for the treatment of benign prostatic hypertrophy in patients with heart failure? Journal of Cardiac Failure, 2011 Oct;17(10):875-7.
Decisional Needs in Patients Considering Left Ventricular Assist Device as Destination Therapy: Contrast Between Acceptors and Decliners [Colleen K. McIlvennan, DNP, Larry A. Allen, MD, MHS, Carolyn Nowels, MSPH, Joseph C. Cleveland, MD, Andreas Brieke, MD, Daniel D. Matlock, MD, MPH]
(submitted to QCOR for 05/2013)
Approaches to Decision Support and Preparation for Destination Therapy Left Ventricular Assist Device: A Nationwide Sample of Mechanical Circulatory Support Coordinators [Colleen K. McIlvennan, DNP, Mahav Narayan, Anne Cannon, BSN, William J. Bradley, RN, Carolyn Nowels, MSPH, Andreas Brieke, MD, Joseph C. Cleveland, MD, Daniel D. Matlock, MD, MPH, Larry A. Allen, MD, MHS] (submitted to QCOR for 05/2013)
McIlvennan CK, Allen LA. Key clinical guidelines: 2013 ACCF/AHA guideline for the management of heart failure. The Hospitalist 2013; http://www.the-hospitalist.org/view/0/index.html
McIlvennan CK, Allen LA, Nowels C, Cleveland JC, Brieke A, Matlock DD. Decision Making for Destination Therapy Left Ventricular Assist Devices: “There was no choice” versus “I thought about it an awful lot.” Submitted to Circ Cardiovasc Outcomes 1/2/2014.
McIlvennan CK, Eapen ZJ, Allen LA. Hospital readmissions reduction program. Circulation. 2015 May 19;131(20):1796-803. PubMed PMID: 25986448
Magid KH, Matlock DD, Thompson JS, McIlvennan CK, Allen LA. The influence of expected risks on decision making for destination therapy left ventricular assist device: An MTurk survey. J Heart Lung Transplant. 2015 Jul;34(7):988-90. PubMed PMID: 25935437
Magid M, Jones J, Allen LA, McIlvennan CK, Magid K, Thompson JS, Matlock DD. The Perceptions of Important Elements of Caregiving for a Left Ventricular Assist Device Patient: A Qualitative Meta-Synthesis. J Cardiovasc Nurs. 2015 Apr 15. [Epub ahead of print] PubMed PMID: 25882647
McIlvennan CK, Jones J, Allen LA, Lindenfeld J, Swetz KM, Nowels C, Matlock DD. Decision-making for destination therapy left ventricular assist devices: implications for caregivers. Circ Cardiovasc Qual Outcomes. 2015 Mar;8(2):172-8. PubMed PMID: 25759442
McIlvennan CK, Page RL 2nd, Ambardekar AV, Brieke A, Lindenfeld J. Activated partial thromboplastin time overestimates anti-coagulation in left ventricular assist device patients. J Heart Lung Transplant. 2014 Dec;33(12):1312-4. PubMed PMID: 25443872
McIlvennan CK, Matlock DD, Narayan MP, Nowels C, Thompson JS, Cannon A, Bradley WJ, Allen LA. Perspectives from mechanical circulatory support coordinators on the pre-implantation decision process for destination therapy left ventricular assist devices. Heart Lung. 2015 May-Jun;44(3):219-24. PubMed PMID: 25724116
Thompson JS, Matlock DD, McIlvennan CK, Jenkins AR, Allen LA. Development of a Decision Aid for Patients With Advanced Heart Failure Considering a Destination Therapy Left Ventricular Assist Device. JACC Heart Fail. 2015 Dec;3(12):965-76. PubMed PMID: 26671675
McIlvennan CK, Jones J, Allen LA, Lindenfeld J, Swetz KM, Nowels C, Matlock DD. Decision-making for destination therapy left ventricular assist devices: implications for caregivers. Circ Cardiovasc Qual Outcomes. 2015 Mar;8(2):172-8. PubMed PMID: 25759442
McIlvennan CK, Magid KH, Ambardekar AV, Thompson JS, Matlock DD, Allen LA. Clinical outcomes after continuous-flow left ventricular assist device: a systematic review. Circ Heart Fail. 2014 Nov;7(6):1003-13. PubMed PMID: 25294625
Iacovetto MC, Matlock DD, McIlvennan CK, Thompson JS, Bradley W, LaRue SJ, Allen LA. Educational resources for patients considering a left ventricular assist device: a cross-sectional review of internet, print, and multimedia materials. Circ Cardiovasc Qual Outcomes. 2014 Nov;7(6):905-11. PubMed PMID: 25316772
McIlvennan CK, Allen LA. Outcomes in acute heart failure: 30-day readmission versus death. Curr Heart Fail Rep. 2014 Dec;11(4):445-52. PubMed PMID: 25139630
McIlvennan CK, Allen LA, Nowels C, Brieke A, Cleveland JC, Matlock DD. Decision making for destination therapy left ventricular assist devices: "there was no choice" versus "I thought about it an awful lot". Circ Cardiovasc Qual Outcomes. 2014 May;7(3):374-80. PubMed PMID: 24823949
McIlvennan CK, Allen LA. To DT or not to DT, that is the question: working toward a comprehensive, patient-centered perspective on left ventricular assist device for destination therapy. Circ Cardiovasc Qual Outcomes. 2014 Jan;7(1):13-4. PubMed PMID: 24425698
Narayan M, Jones J, Portalupi LB, McIlvennan CK, Matlock DD, Allen LA. Patient Perspectives on Communication of Individualized Survival Estimates in Heart Failure. J Card Fail. 2016 Dec 21. [Epub ahead of print] PubMed PMID: 28012883
Allen LA, Matlock DD, Shetterly SM, Xu S, Levy WC, Portalupi LB, McIlvennan CK, Gurwitz JH, Johnson ES, Smith DH, Magid DJ. Use of Risk Models to Predict Death in the Next Year Among Individual Ambulatory Patients With Heart Failure. JAMA Cardiol. 2016 Dec 21. [Epub ahead of print] PubMed PMID: 28002546
McIlvennan CK, Matlock DD. Palliative Care in Heart Failure: Architects Needed. J Card Fail. 2017 Feb;23(2):201-203. PubMed PMID: 27956152
McIlvennan CK, Wordingham SE, Allen LA, Matlock DD, Jones J, Dunlay SM, Swetz KM. Deactivation of Left Ventricular Assist Devices: Differing Perspectives of Cardiology and Hospice/Palliative Medicine Clinicians. J Card Fail. 2016 Dec 5. [Epub ahead of print] PubMed PMID: 27932271
Jurgens PT, Allen LA, Ambardekar AV, McIlvennan CK. Chronic Norovirus Infections in Cardiac Transplant Patients: Considerations for Evaluation and Management. Prog Transplant. 2016 Nov 23. [Epub ahead of print] PubMed PMID: 27881814
Wordingham SE, McIlvennan CK, Fendler TJ, Behnken AL, Dunlay SM, Kirkpatrick JN, Swetz KM. Palliative Care Clinicians Caring for Patients Before and After Continuous Flow-Left Ventricular Assist Device. J Pain Symptom Manage. 2017 Oct;54(4):601-608. PubMed PMID: 28711755
McIlvennan CK. Improving Decision Making for Advanced Heart Failure Patients and Caregivers. J Nurs Adm. 2017 Apr;47(4):190-191. PubMed PMID: 28333785
McIlvennan CK. Looking on the BRIGHT side of health literacy in patients with cardiac transplantation: Where are we and where do we need to go?. J Heart Lung Transplant. 2016 Oct 13. [Epub ahead of print] PubMed PMID: 27876414
Bandle B, Ward K, Min SJ, Drake C, McIlvennan CK, Kao D, Wald HL. Can Braden Score Predict Outcomes for Hospitalized Heart Failure Patients?. J Am Geriatr Soc. 2017 Jun;65(6):1328-1332. PubMed PMID: 28221672
Narayan M, Jones J, Portalupi LB, McIlvennan CK, Matlock DD, Allen LA. Patient Perspectives on Communication of Individualized Survival Estimates in Heart Failure. J Card Fail. 2017 Apr;23(4):272-277. PubMed PMID: 28012883
Paine AM, Allen LA, Thompson JS, McIlvennan CK, Jenkins A, Hammes A, Kroehl M, Matlock DD. Anchoring in Destination-Therapy Left Ventricular Assist Device Decision Making: A Mechanical Turk Survey. J Card Fail. 2016 Nov;22(11):908-912. PubMed PMID: 27150493
Magid M, Jones J, Allen LA, McIlvennan CK, Magid K, Thompson JS, Matlock DD. The Perceptions of Important Elements of Caregiving for a Left Ventricular Assist Device Patient: A Qualitative Meta-Synthesis. J Cardiovasc Nurs. 2016 May-Jun;31(3):215-25. PubMed PMID: 25882647
Wordingham SE, McIlvennan CK, Dionne-Odom JN, Swetz KM. Complex Care Options for Patients With Advanced Heart Failure Approaching End of Life. Curr Heart Fail Rep. 2016 Feb;13(1):20-9. PubMed PMID: 26829929
Allen LA, Matlock DD, Shetterly SM, Xu S, Levy WC, Portalupi LB, McIlvennan CK, Gurwitz JH, Johnson ES, Smith DH, Magid DJ. Use of Risk Models to Predict Death in the Next Year Among Individual Ambulatory Patients With Heart Failure. JAMA Cardiol. 2017 Apr 1;2(4):435-441. PubMed PMID: 28002546
McIlvennan CK, Matlock DD. Palliative Care in Heart Failure: Architects Needed. J Card Fail. 2017 Feb;23(2):201-203. PubMed PMID: 27956152
McIlvennan CK, Wordingham SE, Allen LA, Matlock DD, Jones J, Dunlay SM, Swetz KM. Deactivation of Left Ventricular Assist Devices: Differing Perspectives of Cardiology and Hospice/Palliative Medicine Clinicians. J Card Fail. 2017 Sep;23(9):708-712. PubMed PMID: 27932271
McIlvennan CK, Allen LA. Quality of Life After Left Ventricular Assist Device Implantation: In a World Full of Data, #Missingness. J Card Fail. 2016 May;22(5):338-9. PubMed PMID: 26850931
McIlvennan CK. Looking on the BRIGHT side of health literacy in patients with cardiac transplantation: Where are we and where do we need to go?. J Heart Lung Transplant. 2017 Mar;36(3):253-255. PubMed PMID: 27876414
McIlvennan CK, Lindenfeld J, Kao DP. Sex differences and in-hospital outcomes in patients undergoing mechanical circulatory support implantation. J Heart Lung Transplant. 2017 Jan;36(1):82-90. PubMed PMID: 27773454
McIlvennan CK, Jones J, Allen LA, Swetz KM, Nowels C, Matlock DD. Bereaved Caregiver Perspectives on the End-of-Life Experience of Patients With a Left Ventricular Assist Device. JAMA Intern Med. 2016 Apr;176(4):534-9. PubMed PMID: 26998594
McIlvennan CK, Babu AN, Brieke A, Ambardekar AV. Concomitant surgical cryoablation for refractory ventricular tachycardia and left ventricular assist device placement: a dual remedy but a recipe for thrombosis?. J Cardiothorac Surg. 2016 Apr 11;11(1):53. PubMed PMID: 27067868
McIlvennan CK, Allen LA. Palliative care in patients with heart failure. BMJ. 2016 Apr 14;353:i1010. PubMed PMID: 27079896
Bui QM, Allen LA, Monte AA, Page RL 2nd, McIlvennan CK. Amphetamine-positive urine drug screens in the setting of mexiletine use: A case series. J Heart Lung Transplant. 2016 Aug;35(8):1045-8. PubMed PMID: 27287628
McIlvennan CK, Swetz KM. Lack of Agreement With What We Think Is Right Does Not Necessarily Equal an Ethical Problem: Respecting Patients' Goals of Care. Am J Bioeth. 2016 Aug;16(8):13-5. PubMed PMID: 27366837
McIlvennan CK, Allen LA, Matlock DD. Caregiver Perspectives on End-of-Life Experiences of Patients With Left Ventricular Assist Devices-Reply. JAMA Intern Med. 2016 Aug 1;176(8):1231-2. PubMed PMID: 27479674
Slavin SD, Allen LA, McIlvennan CK, Desai AS, Schaefer KG, Warraich HJ. Left Ventricular Assist Device Withdrawal: Ethical, Psychological, and Logistical Challenges. J Palliat Med. 2020 Jan 2. [Epub ahead of print] PubMed PMID: 31895635
Peters LL, McIlvennan CK, Khazanie P. Evaluation and Management of BK Polyomavirus Viremia in Patients With a Heart Transplant. Prog Transplant. 2019 Dec;29(4):367-370. PubMed PMID: 31711393
McIlvennan CK, Benton EM, Allen LA. Educate, Engage, Empower: Leveraging Technology to Promote Learning in Patients Implanted With a Left Ventricular Assist Device and Their Caregivers. Circ Cardiovasc Qual Outcomes. 2019 Oct;12(10):e006107. PubMed PMID: 31601112
McIlvennan CK, Morris MA, Guetterman TC, Matlock DD, Curry L. Qualitative Methodology in Cardiovascular Outcomes Research: A Contemporary Look. Circ Cardiovasc Qual Outcomes. 2019 Sep;12(9):e005828. PubMed PMID: 31510771
Lohmueller LC, Naik A, Breitfeller L, McIlvennan CK, Kanwar M, Murali S, Rosé C, Antaki JF. Factors Affecting Health Care Engagement of Patients With End-Stage Heart Failure: An Exploratory Survey Study. MDM Policy Pract. 2019 Jul-Dec;4(2):2381468319865515. PubMed PMID: 31453361
Warraich HJ, Allen LA, Blue LJ, Chaussee EL, Thompson JS, McIlvennan CK, Flint KM, Matlock DD, Patel CB. Comorbidities and the decision to undergo or forego destination therapy left ventricular assist device implantation: An analysis from the Trial of a Shared Decision Support Intervention for Patients and their Caregivers Offered Destination Therapy for End-Stage Heart Failure (DECIDE-LVAD) study. Am Heart J. 2019 Jul;213:91-96. PubMed PMID: 31129442
Allen LA, McIlvennan CK. Predicting in-hospital worsening heart failure at time of admission, but do we really need another heart failure risk model?. Am Heart J. 2016 Aug;178:188-9. PubMed PMID: 27502868
Wordingham SE, McIlvennan CK. Palliative Care for Patients on Mechanical Circulatory Support. AMA J Ethics. 2019 May 1;21(5):E435-442. PubMed PMID: 31127924
Psotka MA, Ammon SE, Fiuzat M, Bozkurt B, Chung ES, Cole RT, Greene SJ, Kraus D, Ky B, McIlvennan CK, Shah P, Teerlink JR, Walsh MN, Jessup M, O'Connor CM. Heart Failure Site-Based Research in the United States: Results of the Heart Failure Society of America Research Network Survey. JACC Heart Fail. 2019 May;7(5):431-438. PubMed PMID: 30981742
Kanwar MK, Lohmueller LC, Teuteberg J, Kormos RL, Rogers JG, Benza RL, Lindenfeld J, McIlvennan C, Bailey SH, Murali S, Antaki JF. Risk Assessment in Patients with a Left Ventricular Assist Device Across INTERMACS Profiles Using Bayesian Analysis. ASAIO J. 2019 Jul;65(5):436-441. PubMed PMID: 30688695
Kapu AN, McComiskey CA, Buckler L, Derkazarian J, Goda T, Lofgren MA, McIlvennan CK, Raaum J, Selig PM, Sicoutris C, Todd B, Turner V, Card E, Wells N. Advanced Practice Providers' Perceptions of Patient Workload: Results of a Multi-Institutional Survey. J Nurs Adm. 2016 Oct;46(10):521-9. PubMed PMID: 27681513
McIlvennan CK, Thompson JS, Matlock DD, Cleveland JC Jr, Dunlay SM, LaRue SJ, Lewis EF, Patel CB, Walsh MN, Allen LA. A Multicenter Trial of a Shared Decision Support Intervention for Patients and Their Caregivers Offered Destination Therapy for Advanced Heart Failure: DECIDE-LVAD: Rationale, Design, and Pilot Data. J Cardiovasc Nurs. 2016 Nov Dec;31(6):E8-E20. PubMed PMID: 27203272
McIlvennan CK, Page RL 2nd. Foundations of Pharmacotherapy for Heart Failure With Reduced Ejection Fraction: Evidence Meets Practice, Part II. J Cardiovasc Nurs. 2016 Nov Dec;31(6):545-554. PubMed PMID: 27028591
McIlvennan CK, Lindenfeld J, Kao DP. Sex differences and in-hospital outcomes in patients undergoing mechanical circulatory support implantation. J Heart Lung Transplant. 2017 Jan;36(1):82-90. PubMed PMID: 27773454
McIlvennan CK, Grady KL, Matlock DD, Helmkamp LJ, Abshire M, Allen LA. End of life for patients with left ventricular assist devices: Insights from INTERMACS. J Heart Lung Transplant. 2019 Apr;38(4):374-381. PubMed PMID: 30642799
McIlvennan CK, Matlock DD. "Have You Ever Seen That Movie Misery…" Time to Think Outside the Box to Help Caregivers of Patients With Left Ventricular Assist Devices. Circ Cardiovasc Qual Outcomes. 2019 Jan;12(1):e005454. PubMed PMID: 30636481
Allen LA, McIlvennan CK. Mis-GUIDED-The Importance of Negative Trials of Health Care Delivery and Implementation Science. JAMA Cardiol. 2020 Nov 18. [Epub ahead of print] PubMed PMID: 33206151
Allen LA, Venechuk G, McIlvennan CK, Page Ii RL, Knoepke CE, Helmkamp LJ, Khazanie P, Peterson PN, Pierce K, Harger G, Thompson JS, Dow TJ, Richards L, Huang J, Strader JR, Trinkley KE, Kao DP, Magid DJ, Buttrick P, Matlock DD. An Electronically Delivered, Patient-Activation Tool for Intensification of Medications for Chronic Heart Failure with Reduced Ejection Fraction: The EPIC-HF Trial. Circulation. 2020 Nov 17. [Epub ahead of print] PubMed PMID: 33201741
McIlvennan CK, Jones J, Makic M, Meek PM, Chaussee E, Thompson JS, Matlock DD, Allen LA. Stress and Coping Among Family Caregivers of Patients With a Destination Therapy Left Ventricular Assist Device: A Multicenter Mixed Methods Study. Circ Heart Fail. 2021 Oct;14(10):e008243. PubMed PMID: 34465131
Peters LL, Ambardekar AV, Rosenthal LD, McIlvennan CK. Universal Depression Screen of Ambulatory Heart Transplant Recipients With Referral for Mental Health Intervention: A Quality Improvement Project. J Nurs Care Qual. 2020 Sep 14. [Epub ahead of print] PubMed PMID: 32956136
Knoepke CE, Chaussee EL, Matlock DD, Thompson JS, McIlvennan CK, Ambardekar AV, Schaffer EM, Khazanie P, Scherer L, Arnold RM, Allen LA. Changes over Time in Patient Stated Values and Treatment Preferences Regarding Aggressive Therapies: Insights from the DECIDE-LVAD Trial. Med Decis Making. 2021 Jul 23;:272989X211028234. [Epub ahead of print] PubMed PMID: 34296623
Scherer LD, Matlock DD, Allen LA, Knoepke CE, McIlvennan CK, Fitzgerald MD, Kini V, Tate CE, Lin G, Lum HD. Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care. MDM Policy Pract. 2021 Jan-Jun;6(1):23814683211019947. PubMed PMID: 34277949
Venechuk GE, Khazanie P, Page RL 2nd, Knoepke CE, Helmkamp LJ, Peterson PN, Pierce K, Thompson JS, Huang J, Strader JR, Dow TJ, Richards L, Trinkley KE, Kao DP, McIlvennan CK, Magid DJ, Buttrick PM, Matlock DD, Allen LA. An Electronically delivered, Patient-activation tool for Intensification of medications for Chronic Heart Failure with reduced ejection fraction: Rationale and design of the EPIC-HF trial. Am Heart J. 2020 Nov;229:144-155. PubMed PMID: 32866454
Fraser MT, Mcilvennan CK. Reorienting Ourselves to Delirium: Caring for Older Patients Hospitalized With Heart Failure. J Card Fail. 2021 Apr;27(4):460-463. PubMed PMID: 33745663
Thompson JS, Fitzgerald MD, Allen LA, McIlvennan CK, Glasgow RE, Wynia M, Morris MA, Beilenson J, Gherst C, Matlock DD. Shared Decision-Making for Left Ventricular Assist Devices: Rationale and Design of a Nationwide Dissemination and Implementation Project. Circ Cardiovasc Qual Outcomes. 2021 Feb;14(2):e007256. PubMed PMID: 33530698
Bass ME, Kiser TH, Page RL 2nd, McIlvennan CK, Allen LA, Wright G, Shakowski C. Comparative effectiveness of direct oral anticoagulants and warfarin for the treatment of left ventricular thrombus. J Thromb Thrombolysis. 2021 Aug;52(2):517-522. PubMed PMID: 33420896
Flint K, Chaussee EL, Henderson K, Breathett K, Khazanie P, Thompson JS, Mcilvennan CK, Larue SJ, Matlock DD, Allen LA. Social Determinants of Health and Rates of Implantation for Patients Considering Destination Therapy Left Ventricular Assist Device. J Card Fail. 2021 Apr;27(4):497-500. PubMed PMID: 33346077
Allen LA, McIlvennan CK. Mis-GUIDED-The Importance of Negative Trials of Health Care Delivery and Implementation Science. JAMA Cardiol. 2021 Feb 1;6(2):135-136. PubMed PMID: 33206151
Kanwar MK, McIlvennan CK, Lohmueller LC, Bailey SH, Rogers JG, Teuteberg J, Cowger J. Defining Optimal Outcomes in Patients with Left Ventricular Assist Devices. ASAIO J. 2020 Jul 16. [Epub ahead of print] PubMed PMID: 32701625
Allen LA, Venechuk G, McIlvennan CK, Page RL 2nd, Knoepke CE, Helmkamp LJ, Khazanie P, Peterson PN, Pierce K, Harger G, Thompson JS, Dow TJ, Richards L, Huang J, Strader JR, Trinkley KE, Kao DP, Magid DJ, Buttrick PM, Matlock DD. An Electronically Delivered Patient-Activation Tool for Intensification of Medications for Chronic Heart Failure With Reduced Ejection Fraction: The EPIC-HF Trial. Circulation. 2021 Feb 2;143(5):427-437. PubMed PMID: 33201741
Peters LL, Ambardekar AV, Rosenthal LD, McIlvennan CK. Universal Depression Screen of Ambulatory Heart Transplant Recipients With Referral for Mental Health Intervention: A Quality Improvement Project. J Nurs Care Qual. 2021 Jul-Sep 01;36(3):236-241. PubMed PMID: 32956136
Kanwar MK, McIlvennan CK, Lohmueller LC, Bailey SH, Rogers JG, Teuteberg J, Cowger J. Defining Optimal Outcomes in Patients with Left Ventricular Assist Devices. ASAIO J. 2021 Apr 1;67(4):397-404. PubMed PMID: 32701625
Samsky MD, DeVore AD, McIlvennan CK, Granger CB, Granger BB, Hernandez AF, Felker GM, Fonarow GC, Albert NM, Piña IL, Lanfear D, Allen LA. Heart Failure Clinical Trial Operations During the COVID-19 Pandemic: Results From a Multicenter Survey. Circ Heart Fail. 2020 Sep;13(9):e007456. PubMed PMID: 32700547
Deininger KM, Tsunoda SM, Hirsch JD, Anderson H, Lee YM, McIlvennan CK, Page RL 2nd, Tran JN, Aquilante CL. National survey of physicians' perspectives on pharmacogenetic testing in solid organ transplantation. Clin Transplant. 2020 Oct;34(10):e14037. PubMed PMID: 32654213
Venechuk GE, Khazanie P, Page RL 2nd, Knoepke CE, Helmkamp LJ, Peterson PN, Pierce K, Thompson JS, Huang J, Strader JR, Dow TJ, Richards L, Trinkley KE, Kao DP, McIlvennan CK, Magid DJ, Buttrick PM, Matlock DD, Allen LA. An Electronically delivered, Patient-activation tool for Intensification of medications for Chronic Heart Failure with reduced ejection fraction: Rationale and design of the EPIC-HF trial. Am Heart J. 2020 Nov;229:144-155. PubMed PMID: 32866454
Samsky MD, DeVore AD, McIlvennan CK, Granger CB, Granger BB, Hernandez AF, Felker GM, Fonarow GC, Albert NM, Piña IL, Lanfear D, Allen LA. Heart Failure Clinical Trial Operations During the COVID-19 Pandemic: Results From a Multicenter Survey. Circ Heart Fail. 2020 Sep;13(9):e007456. PubMed PMID: 32700547
Deininger KM, Tsunoda SM, Hirsch JD, Anderson H, Lee YM, McIlvennan CK, Page RL 2nd, Tran JN, Aquilante CL. National survey of physicians' perspectives on pharmacogenetic testing in solid organ transplantation. Clin Transplant. 2020 Oct;34(10):e14037. PubMed PMID: 32654213
McIlvennan CK, Allen LA, Devore AD, Granger CB, Kaltenbach LA, Granger BB. Changes in Care Delivery for Patients With Heart Failure During the COVID-19 Pandemic: Results of a Multicenter Survey. J Card Fail. 2020 Jul;26(7):635-636. PubMed PMID: 32505814
McIlvennan CK, Allen LA, Devore AD, Granger CB, Kaltenbach LA, Granger BB. Changes in Care Delivery for Patients With Heart Failure During the COVID-19 Pandemic: Results of a Multicenter Survey. J Card Fail. 2020 Jul;26(7):635-636. PubMed PMID: 32505814
Matlock DD, McIlvennan CK, Thompson JS, Morris MA, Venechuk G, Dunlay SM, LaRue SJ, Lewis EF, Patel CB, Blue L, Chaussee EL, Glasgow RE, Walsh MN, Allen LA. Decision Aid Implementation among Left Ventricular Assist Device Programs Participating in the DECIDE-LVAD Stepped-Wedge Trial. Med Decis Making. 2020 Apr;40(3):289-301. PubMed PMID: 32428430
Fendler TJ, McIlvennan CK, Matlock DD, Thompson JS, Chaussee EL, Dunlay SM, LaRue SJ, Raymer DS, Spertus JA, Lewis EF, Patel CB, Walsh MN, Allen LA. Exploring differences between patients who accept, decline, and are deemed ineligible for left ventricular assist device implantation as destination therapy. J Heart Lung Transplant. 2020 Jul;39(7):721-724. PubMed PMID: 32376277
Kitko L, McIlvennan CK, Bidwell JT, Dionne-Odom JN, Dunlay SM, Lewis LM, Meadows G, Sattler ELP, Schulz R, Strömberg A. Family Caregiving for Individuals With Heart Failure: A Scientific Statement From the American Heart Association. Circulation. 2020 Jun 2;141(22):e864-e878. PubMed PMID: 32349542
McIlvennan CK, Matlock DD, Allen LA, Thompson JS, Ranby KW, Sannes TS. Perceived Stress and Depressive Symptoms as Predictors of Decisional Conflict in Dyads Considering a Left Ventricular Assist Device. Circ Cardiovasc Qual Outcomes. 2020 Mar;13(3):e006155. PubMed PMID: 32148099
Slavin SD, Allen LA, McIlvennan CK, Desai AS, Schaefer KG, Warraich HJ. Left Ventricular Assist Device Withdrawal: Ethical, Psychological, and Logistical Challenges. J Palliat Med. 2020 Apr;23(4):456-458. PubMed PMID: 31895635
Bui CM, Schneider LM, Brown MR, Char DS, McIlvennan CK, Hollander SA. Bereaved Caregiver Perspectives on the End of Life in Pediatric Patients With Ventricular Assist Devices. Pediatr Crit Care Med. 2022 Dec 1;23(12):e601-e606. PubMed PMID: 36194025
Venechuk G, Allen LA, Thompson JS, Morris MA, Matlock DD, McIlvennan CK, Dickert NW, Tietbohl C. Trust and activation in defining patient-clinician interactions for chronic disease management. Patient Educ Couns. 2023 Jan;106:113-119. PubMed PMID: 36167759
Baik D, McIlvennan CK, Baker C, Coats H. Caregiving experiences of older family caregivers of persons with heart failure: A mixed methods study. Geriatr Nurs. 2022 Nov-Dec;48:51-57. PubMed PMID: 36126441
Haynes JE, Matlock DD, Thompson JS, Mosley BS, Fitzgerald MD, McIlvennan CK, Allen LA. "Would You Get a Destination Therapy Left Ventricular Assist Device?": Health Care Workers' Views on a Preference-Sensitive Decision. Circ Heart Fail. 2022 Dec;15(12):e009626. PubMed PMID: 36062460
Matlock DD, McIlvennan CK, Thompson JS, Morris MA, Venechuk G, Dunlay SM, LaRue SJ, Lewis EF, Patel CB, Blue L, Chaussee EL, Glasgow RE, Walsh MN, Allen LA. Decision Aid Implementation among Left Ventricular Assist Device Programs Participating in the DECIDE-LVAD Stepped-Wedge Trial. Med Decis Making. 2020 Apr;40(3):289-301. PubMed PMID: 32428430
Knoepke CE, Siry-Bove B, Mayton C, Latimer A, Hart J, Allen LA, Daugherty SL, McIlvennan CK, Matlock DD, Khazanie P. Variation in Left Ventricular Assist Device Postdischarge Caregiver Requirements: Results From a Mixed-Methods Study With Equity Implications. Circ Heart Fail. 2022 Aug;15(8):e009583. PubMed PMID: 35862012
Fendler TJ, McIlvennan CK, Matlock DD, Thompson JS, Chaussee EL, Dunlay SM, LaRue SJ, Raymer DS, Spertus JA, Lewis EF, Patel CB, Walsh MN, Allen LA. Exploring differences between patients who accept, decline, and are deemed ineligible for left ventricular assist device implantation as destination therapy. J Heart Lung Transplant. 2020 Jul;39(7):721-724. PubMed PMID: 32376277
Kitko L, McIlvennan CK, Bidwell JT, Dionne-Odom JN, Dunlay SM, Lewis LM, Meadows G, Sattler ELP, Schulz R, Strömberg A. Family Caregiving for Individuals With Heart Failure: A Scientific Statement From the American Heart Association. Circulation. 2020 Jun 2;141(22):e864-e878. PubMed PMID: 32349542
Raymer DS, Allen LA, Chaussee EL, McIlvennan CK, Thompson JS, Fairclough DL, Dunlay SM, Matlock DD, Larue SJ. Health Literacy in Patients Considering a Left Ventricular Assist Device: Findings From the DECIDE-LVAD Trial. J Card Fail. 2022 Aug;28(8):1318-1325. PubMed PMID: 35569806
McIlvennan CK, Matlock DD, Allen LA, Thompson JS, Ranby KW, Sannes TS. Perceived Stress and Depressive Symptoms as Predictors of Decisional Conflict in Dyads Considering a Left Ventricular Assist Device. Circ Cardiovasc Qual Outcomes. 2020 Mar;13(3):e006155. PubMed PMID: 32148099
Slavin SD, Allen LA, McIlvennan CK, Desai AS, Schaefer KG, Warraich HJ. Left Ventricular Assist Device Withdrawal: Ethical, Psychological, and Logistical Challenges. J Palliat Med. 2020 Apr;23(4):456-458. PubMed PMID: 31895635
Fraser M, McIlvennan CK, Joseph N, Alexy T. From the Other Side of the Exam Room: Using the New Universal Definition and Classification of Heart Failure to Engage Patients and Caregivers. J Card Fail. 2022 Feb 11. [Epub ahead of print] PubMed PMID: 35158024
McIlvennan CK, Jones J, Makic M, Meek PM, Chaussee E, Thompson JS, Matlock DD, Allen LA. Stress and Coping Among Family Caregivers of Patients With a Destination Therapy Left Ventricular Assist Device: A Multicenter Mixed Methods Study. Circ Heart Fail. 2021 Oct;14(10):e008243. PubMed PMID: 34465131
Knoepke CE, Chaussee EL, Matlock DD, Thompson JS, McIlvennan CK, Ambardekar AV, Schaffer EM, Khazanie P, Scherer L, Arnold RM, Allen LA. Changes over Time in Patient Stated Values and Treatment Preferences Regarding Aggressive Therapies: Insights from the DECIDE-LVAD Trial. Med Decis Making. 2022 Apr;42(3):404-414. PubMed PMID: 34296623
Scherer LD, Matlock DD, Allen LA, Knoepke CE, McIlvennan CK, Fitzgerald MD, Kini V, Tate CE, Lin G, Lum HD. Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care. MDM Policy Pract. 2021 Jan-Jun;6(1):23814683211019947. PubMed PMID: 34277949
McIlvennan CK, Matlock DD. "Have You Ever Seen That Movie Misery…" Time to Think Outside the Box to Help Caregivers of Patients With Left Ventricular Assist Devices. Circ Cardiovasc Qual Outcomes. 2019 Jan;12(1):e005454. PubMed PMID: 30636481
McIlvennan CK, Grady KL, Matlock DD, Helmkamp LJ, Abshire M, Allen LA. End of life for patients with left ventricular assist devices: Insights from INTERMACS. J Heart Lung Transplant. 2019 Apr;38(4):374-381. PubMed PMID: 30642799
Kanwar MK, McIlvennan CK, Lohmueller LC, Bailey SH, Rogers JG, Teuteberg J, Cowger J. Defining Optimal Outcomes in Patients with Left Ventricular Assist Devices. ASAIO J. 2021 Apr 1;67(4):397-404. PubMed PMID: 32701625
Peters LL, Ambardekar AV, Rosenthal LD, McIlvennan CK. Universal Depression Screen of Ambulatory Heart Transplant Recipients With Referral for Mental Health Intervention: A Quality Improvement Project. J Nurs Care Qual. 2021 Jul-Sep 01;36(3):236-241. PubMed PMID: 32956136
Kanwar MK, Lohmueller LC, Teuteberg J, Kormos RL, Rogers JG, Benza RL, Lindenfeld J, McIlvennan C, Bailey SH, Murali S, Antaki JF. Risk Assessment in Patients with a Left Ventricular Assist Device Across INTERMACS Profiles Using Bayesian Analysis. ASAIO J. 2019 Jul;65(5):436-441. PubMed PMID: 30688695
Allen LA, Venechuk G, McIlvennan CK, Page RL 2nd, Knoepke CE, Helmkamp LJ, Khazanie P, Peterson PN, Pierce K, Harger G, Thompson JS, Dow TJ, Richards L, Huang J, Strader JR, Trinkley KE, Kao DP, Magid DJ, Buttrick PM, Matlock DD. An Electronically Delivered Patient-Activation Tool for Intensification of Medications for Chronic Heart Failure With Reduced Ejection Fraction: The EPIC-HF Trial. Circulation. 2021 Feb 2;143(5):427-437. PubMed PMID: 33201741
Allen LA, McIlvennan CK. Mis-GUIDED-The Importance of Negative Trials of Health Care Delivery and Implementation Science. JAMA Cardiol. 2021 Feb 1;6(2):135-136. PubMed PMID: 33206151
Flint K, Chaussee EL, Henderson K, Breathett K, Khazanie P, Thompson JS, Mcilvennan CK, Larue SJ, Matlock DD, Allen LA. Social Determinants of Health and Rates of Implantation for Patients Considering Destination Therapy Left Ventricular Assist Device. J Card Fail. 2021 Apr;27(4):497-500. PubMed PMID: 33346077
Bass ME, Kiser TH, Page RL 2nd, McIlvennan CK, Allen LA, Wright G, Shakowski C. Comparative effectiveness of direct oral anticoagulants and warfarin for the treatment of left ventricular thrombus. J Thromb Thrombolysis. 2021 Aug;52(2):517-522. PubMed PMID: 33420896
Psotka MA, Ammon SE, Fiuzat M, Bozkurt B, Chung ES, Cole RT, Greene SJ, Kraus D, Ky B, McIlvennan CK, Shah P, Teerlink JR, Walsh MN, Jessup M, O'Connor CM. Heart Failure Site-Based Research in the United States: Results of the Heart Failure Society of America Research Network Survey. JACC Heart Fail. 2019 May;7(5):431-438. PubMed PMID: 30981742
Thompson JS, Fitzgerald MD, Allen LA, McIlvennan CK, Glasgow RE, Wynia M, Morris MA, Beilenson J, Gherst C, Matlock DD. Shared Decision-Making for Left Ventricular Assist Devices: Rationale and Design of a Nationwide Dissemination and Implementation Project. Circ Cardiovasc Qual Outcomes. 2021 Feb;14(2):e007256. PubMed PMID: 33530698
Fraser MT, Mcilvennan CK. Reorienting Ourselves to Delirium: Caring for Older Patients Hospitalized With Heart Failure. J Card Fail. 2021 Apr;27(4):460-463. PubMed PMID: 33745663
Wordingham SE, McIlvennan CK. Palliative Care for Patients on Mechanical Circulatory Support. AMA J Ethics. 2019 May 1;21(5):E435-442. PubMed PMID: 31127924
Warraich HJ, Allen LA, Blue LJ, Chaussee EL, Thompson JS, McIlvennan CK, Flint KM, Matlock DD, Patel CB. Comorbidities and the decision to undergo or forego destination therapy left ventricular assist device implantation: An analysis from the Trial of a Shared Decision Support Intervention for Patients and their Caregivers Offered Destination Therapy for End-Stage Heart Failure (DECIDE-LVAD) study. Am Heart J. 2019 Jul;213:91-96. PubMed PMID: 31129442
McIlvennan CK, Morris MA, Guetterman TC, Matlock DD, Curry L. Qualitative Methodology in Cardiovascular Outcomes Research: A Contemporary Look. Circ Cardiovasc Qual Outcomes. 2019 Sep;12(9):e005828. PubMed PMID: 31510771
McIlvennan CK, Benton EM, Allen LA. Educate, Engage, Empower: Leveraging Technology to Promote Learning in Patients Implanted With a Left Ventricular Assist Device and Their Caregivers. Circ Cardiovasc Qual Outcomes. 2019 Oct;12(10):e006107. PubMed PMID: 31601112
Pfahl J, Thompson JS, Matlock DD, Allen LA, Dionne-Odom JN, Bakitas MA, McIlvennan CK. ENABLE-LVAD: Development and Implementation of a Novel Training Program for Clinicians Supporting Family Caregivers of Patients With a Left Ventricular Assist Device. J Cardiovasc Nurs. 2023 Nov 17. [Epub ahead of print] PubMed PMID: 37974325
Kim JM, Maqsood MH, Makuvire T, McIlvennan CK, Thompson JS, Matlock DD, Allen LA, Warraich HJ. Gender-based differences in decision making, quality of life and survival among patients undergoing left ventricular assist device evaluation. PLoS One. 2023;18(10):e0293121. PubMed PMID: 37878597
Grady KL, Kallen MA, Beiser DG, Lindenfeld J, Teuteberg J, Allen LA, McIlvennan CK, Rich J, Yancy C, Lee CS, Denfeld QE, Kiernan M, Walsh MN, Adler E, Ruo B, Stehlik J, Kirklin JK, Bedjeti K, Cella D, Hahn EA. Novel measures to assess ventricular assist device patient-reported outcomes: Findings from the MCS A-QOL study. J Heart Lung Transplant. 2024 Jan;43(1):36-50. PubMed PMID: 37591454
Swat SA, Helmkamp LJ, Tietbohl C, Thompson JS, Fitzgerald M, McIlvennan CK, Harger G, Ho PM, Ahmad FS, Ahmad T, Buttrick P, Allen LA. Clinical Inertia Among Outpatients With Heart Failure: Application of Treatment Nonintensification Taxonomy to EPIC-HF Trial. JACC Heart Fail. 2023 Nov;11(11):1579-1591. PubMed PMID: 37589610
Abshire Saylor M, DeGroot L, Pavlovic N, McIlvennan CK, Taylor J, Gilotra NA, Gallo JJ, Davidson PM, Wolff JL, Szanton SL. The Context of Caregiving in Heart Failure: A Dyadic, Mixed Methods Analysis. J Cardiovasc Nurs. 2023 Apr 12. [Epub ahead of print] PubMed PMID: 37068019
Bechthold AC, Knoepke CE, Ejem DB, McIlvennan CK, Wells RD, Matlock DD, Bakitas MA, Dionne-Odom JN. How Values Are Discussed, Reflected Upon, and Acted On by Patients and Family Caregivers in the Context of Heart Failure: A Scoping Review. Med Decis Making. 2023 May;43(4):508-520. PubMed PMID: 37057380
Hahn EA, Allen LA, Lee CS, Denfeld QE, Stehlik J, Cella D, Lindenfeld J, Teuteberg JJ, McIlvennan CK, Kiernan MS, Beiser DG, Walsh MN, Adler ED, Ruo B, Kirklin JK, Klein L, Bedjeti K, Cummings PD, Burns JL, Vela AM, Grady KL. PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study. J Card Fail. 2023 Oct;29(10):1398-1411. PubMed PMID: 37004864
McIlvennan CK, Urra M, Helmkamp L, Messenger JC, Raymer D, Ream KS, Oldemeyer JB, Ambardekar AV, Barnes K, Allen LA. Magnitude of troponin elevation in patients with biomarker evidence of myocardial injury: relative frequency and outcomes in a cohort study across a large healthcare system. BMC Cardiovasc Disord. 2023 Mar 24;23(1):151. PubMed PMID: 36959555
Hahn EA, Walsh MN, Allen LA, Lee CS, Denfeld QE, Teuteberg JJ, Beiser DG, McIlvennan CK, Lindenfeld J, Klein L, Adler ED, Stehlik J, Ruo B, Bedjeti K, Cummings PD, Vela AM, Grady KL. Validity of Patient-Reported Outcomes Measurement Information System Physical, Mental, and Social Health Measures After Left Ventricular Assist Device Implantation and Implications for Patient Care. Circ Cardiovasc Qual Outcomes. 2023 Feb;16(2):e008690. PubMed PMID: 36752104
Venechuk G, Allen LA, Thompson JS, Morris MA, Matlock DD, McIlvennan CK, Dickert NW, Tietbohl C. Trust and activation in defining patient-clinician interactions for chronic disease management. Patient Educ Couns. 2023 Jan;106:113-119. PubMed PMID: 36167759
Fraser M, McIlvennan CK, Joseph N, Alexy T. From the Other Side of the Exam Room: Using the New Universal Definition and Classification of Heart Failure to Engage Patients and Caregivers. J Card Fail. 2023 Sep;29(9):1338-1339. PubMed PMID: 35158024
Peters LL, McIlvennan CK, Khazanie P. Evaluation and Management of BK Polyomavirus Viremia in Patients With a Heart Transplant. Prog Transplant. 2019 Dec;29(4):367-370. PubMed PMID: 31711393
Lohmueller LC, Naik A, Breitfeller L, McIlvennan CK, Kanwar M, Murali S, Rosé C, Antaki JF. Factors Affecting Health Care Engagement of Patients With End-Stage Heart Failure: An Exploratory Survey Study. MDM Policy Pract. 2019 Jul-Dec;4(2):2381468319865515. PubMed PMID: 31453361