Jenny Raybin, CPNP, MS

Professional Titles

• Program Leader Pediatric Palliative Care; Pediatric Nurse Practitioner

Research Interests

Publications

• Wilkening GN, Madden JR. Memory disorders in children with central nervous system germ cell tumors. J Pediatr Oncol Nurs. 2012 May-Jun;29(3):161-70. PubMed PMID: 22647728
• Qi XS, Stinauer M, Rogers B, Madden JR, Wilkening GN, Liu AK. Potential for improved intelligence quotient using volumetric modulated arc therapy compared with conventional 3-dimensional conformal radiation for whole-ventricular radiation in children. Int J Radiat Oncol Biol Phys. 2012 Dec 1;84(5):1206-11. PubMed PMID: 22516805
• Sturm D, Witt H, Hovestadt V, Khuong-Quang DA, Jones DT, Konermann C, Pfaff E, Tönjes M, Sill M, Bender S, Kool M, Zapatka M, Becker N, Zucknick M, Hielscher T, Liu XY, Fontebasso AM, Ryzhova M, Albrecht S, Jacob K, Wolter M, Ebinger M, Schuhmann MU, van Meter T, Frühwald MC, Hauch H, Pekrun A, Radlwimmer B, Niehues T, von Komorowski G, Dürken M, Kulozik AE, Madden J, Donson A, Foreman NK, Drissi R, Fouladi M, Scheurlen W, von Deimling A, Monoranu C, Roggendorf W, Herold-Mende C, Unterberg A, Kramm CM, Felsberg J, Hartmann C, Wiestler B, Wick W, Milde T, Witt O, Lindroth AM, Schwartzentruber J, Faury D, Fleming A, Zakrzewska M, Liberski PP, Zakrzewski K, Hauser P, Garami M, Klekner A, Bognar L, Morrissy S, Cavalli F, Taylor MD, van Sluis P, Koster J, Versteeg R, Volckmann R, Mikkelsen T, Aldape K, Reifenberger G, Collins VP, Majewski J, Korshunov A, Lichter P, Plass C, Jabado N, Pfister SM. Hotspot mutations in H3F3A and IDH1 define distinct epigenetic and biological subgroups of glioblastoma. Cancer Cell. 2012 Oct 16;22(4):425-37. PubMed PMID: 23079654
• Arland LC, Hendricks-Ferguson VL, Pearson J, Foreman NK, Madden JR. (2012). Development of an in-home standardized end-of-life program for pediatric patients dying of brain tumors. J Spec Pediatr Nurs. In Press.
• Madden JR, Rush SZ, Stence N, Foreman NK, Liu AK. Radiation-induced Gliomas in 2 Pediatric Patients With Neurofibromatosis Type 1: Case Study and Summary of the Literature. J Pediatr Hematol Oncol. 2013 Oct 16. [Epub ahead of print] PubMed PMID: 24136023
• Arland LC, Hendricks-Ferguson VL, Pearson J, Foreman NK, Madden JR. Development of an in-home standardized end-of-life treatment program for pediatric patients dying of brain tumors. J Spec Pediatr Nurs. 2013 Apr;18(2):144-57. PubMed PMID: 23560586
• Pediatric Palliative Care in Hemophilia
• Pediatric Palliative Care in Brain Tumors
• Pediatric Palliative Care in Traumatic Brain Injury
• Madden JR, Hendricks-Ferguson VL, Foreman NK. (2013). Neurologic Symptoms in Pediatric Brain Tumor Patients on Hospice Continuous-Infusion Midazolam. J Hospice Pallia Nurs. Dec: 15(8):435-43.
• Hendricks-Ferguson VL, Akard TF, Madden JR, Peters-Herron A, Levy R. Contributions of Advanced Practice Nurses With a DNP Degree During Palliative and End-of-Life Care of Children With Cancer. J Pediatr Oncol Nurs. 2014 Nov 21. [Epub ahead of print] PubMed PMID: 25416517
• Madden JR, Rush SZ, Stence N, Foreman NK, Liu AK. Radiation-induced gliomas in 2 pediatric patients with neurofibromatosis type 1: case study and summary of the literature. J Pediatr Hematol Oncol. 2014 Mar;36(2):e105-8. PubMed PMID: 24136023
• Hendricks-Ferguson VL, Akard TF, Madden JR, Peters-Herron A, Levy R. Contributions of advanced practice nurses with a DNP degree during palliative and end-of-life care of children with cancer. J Pediatr Oncol Nurs. 2015 Jan-Feb;32(1):32-9. PubMed PMID: 25416517
• Madden JR, Evans A, Hemenway M, Stark E, Kissell E, Polito A, Batson D, Stark M, Dhall G, Garvin JH, Foreman NK, Vibhakar R. Vincristine and Vinblastine: Is checking bilirubin mandatory in children with Brain Tumors?. Pediatr Blood Cancer. 2016 Nov 3. [Epub ahead of print] PubMed PMID: 27808466
• Hendricks-Ferguson VL, Akard TF, Madden JR, Peters-Herron A, Levy R. Contributions of advanced practice nurses with a DNP degree during palliative and end-of-life care of children with cancer. J Pediatr Oncol Nurs. 2015 Jan-Feb;32(1):32-9. PubMed PMID: 25416517
• Green AL, Mulcahy Levy JM, Vibhakar R, Hemenway M, Madden J, Foreman N, Dorris K. Tumor treating fields in pediatric high-grade glioma. Childs Nerv Syst. 2017 Jul;33(7):1043-1045. PubMed PMID: 28470383
• Patel P, Robinson PD, Thackray J, Flank J, Holdsworth MT, Gibson P, Orsey A, Portwine C, Freedman J, Madden JR, Phillips R, Sung L, Dupuis LL. Guideline for the prevention of acute chemotherapy-induced nausea and vomiting in pediatric cancer patients: A focused update. Pediatr Blood Cancer. 2017 Oct;64(10). PubMed PMID: 28453189
• Madden JR, Evans A, Hemenway M, Stark E, Kissell E, Polito A, Batson D, Stark M, Dhall G, Garvin JH, Foreman NK, Vibhakar R. Vincristine and Vinblastine: Is checking bilirubin mandatory in children with Brain Tumors?. Pediatr Blood Cancer. 2017 Jun;64(6). PubMed PMID: 27808466
• Lafay-Cousin L, Smith A, Chi SN, Wells E, Madden J, Margol A, Ramaswamy V, Finlay J, Taylor MD, Dhall G, Strother D, Kieran MW, Foreman NK, Packer RJ, Bouffet E. Clinical, Pathological, and Molecular Characterization of Infant Medulloblastomas Treated with Sequential High-Dose Chemotherapy. Pediatr Blood Cancer. 2016 Sep;63(9):1527-34. PubMed PMID: 27145464
• Madden JR, Vaughn EA, Northouse B, Tong S, Dorneman L, Foreman N, Rush S, Hendricks-Ferguson VL. (2015). Benefits of Using an Early Palliative Care Intervention in Pediatric Oncology: Quality of Life and Cost Savings related to Home Delivery of Cisplatin. J Hospice Palliative Nurs. 17(4):319-24.
• Seelisch J, Sung L, Kelly MJ, Raybin JL, Beauchemin M, Dvorak CC, Kelly KP, Nieder ML, Noll RB, Thackray J, Ullrich NJ, Cabral S, Dupuis LL, Robinson PD. Identifying clinical practice guidelines for the supportive care of children with cancer: A report from the Children's Oncology Group. Pediatr Blood Cancer. 2018 Sep 26;:e27471. [Epub ahead of print] PubMed PMID: 30259647
• Yang MJ, Whelan R, Madden J, Mulcahy Levy JM, Kleinschmidt-DeMasters BK, Hankinson TC, Foreman NK, Handler MH. Intracranial Ewing sarcoma: four pediatric examples. Childs Nerv Syst. 2018 Mar;34(3):441-448. PubMed PMID: 29285586
• Raybin JL, Krajicek M. Creative Arts Therapy in the Context of Children With Cancer: A Concept Analysis. J Pediatr Oncol Nurs. 2019 Oct 8;:1043454219878397. [Epub ahead of print] PubMed PMID: 31592707
• Montgomery KE, Vos K, Raybin JL, Ward J, Balian C, Gilger EA, Li Z. Comparison of child self-report and parent proxy-report of symptoms: Results from a longitudinal symptom assessment study of children with advanced cancer. J Spec Pediatr Nurs. 2020 Oct 28;:e12316. [Epub ahead of print] PubMed PMID: 33118275
• Green AL, Flannery P, Hankinson TC, O'Neill B, Amani V, DeSisto J, Knox A, Chatwin H, Lemma R, Hoffman LM, Mulcahy Levy J, Raybin J, Hemenway M, Gilani A, Koschmann C, Dahl N, Handler M, Pierce A, Venkataraman S, Foreman N, Vibhakar R, Wempe MF, Dorris K. Preclinical and clinical investigation of intratumoral chemotherapy pharmacokinetics in DIPG using gemcitabine. Neurooncol Adv. 2020 Jan-Dec;2(1):vdaa021. PubMed PMID: 32642682
• Montgomery KE, Raybin JL, Ward J, Balian C, Gilger E, Murray P, Li Z. Using Patient-Reported Outcomes to Measure Symptoms in Children With Advanced Cancer. Cancer Nurs. 2020 Jul Aug;43(4):281-289. PubMed PMID: 32559050
• Ward JA, Balian C, Gilger E, Raybin JL, Li Z, Montgomery KE. Electronic Symptom Assessment in Children and Adolescents With Advanced Cancer Undergoing Hematopoietic Stem Cell Transplantation. J Pediatr Oncol Nurs. 2020 Jul Aug;37(4):255-264. PubMed PMID: 32536321
• Nellan A, Wright E, Campbell K, Davies KD, Donson AM, Amani V, Judd A, Hemenway MS, Raybin J, Foreman NK, Rush S, Dorris K. Retrospective analysis of combination carboplatin and vinblastine for pediatric low-grade glioma. J Neurooncol. 2020 Jul;148(3):569-575. PubMed PMID: 32506370
• Raybin JL, Barr E, Krajicek M, Jones J. How Does Creative Arts Therapy Reduce Distress for Children With Cancer? A Metasynthesis of Extant Qualitative Literature [Formula: see text]. J Pediatr Oncol Nurs. 2020 Mar Apr;37(2):91-104. PubMed PMID: 31766942
• Raybin JL, Krajicek M. Creative Arts Therapy in the Context of Children With Cancer: A Concept Analysis. J Pediatr Oncol Nurs. 2020 Mar Apr;37(2):82-90. PubMed PMID: 31592707
• Raybin JL, Tong S, King N, Simms W, Giller R, Montgomery K, Hendricks-Ferguson VL. CVAD Homecare Management: Investigating the Use of a Digital Education Tool During Nurse-Delivered Instruction to Parents for New Central Lines in Children With Cancer. Clin J Oncol Nurs. 2019 Jun 1;23(3):295-300. PubMed PMID: 31099799
• Paw Cho Sing E, Robinson PD, Flank J, Holdsworth M, Thackray J, Freedman J, Gibson P, Orsey AD, Patel P, Phillips R, Portwine C, Raybin JL, Cabral S, Sung L, Dupuis LL. Classification of the acute emetogenicity of chemotherapy in pediatric patients: A clinical practice guideline. Pediatr Blood Cancer. 2019 May;66(5):e27646. PubMed PMID: 30729654
• Seelisch J, Sung L, Kelly MJ, Raybin JL, Beauchemin M, Dvorak CC, Kelly KP, Nieder ML, Noll RB, Thackray J, Ullrich NJ, Cabral S, Dupuis LL, Robinson PD. Identifying clinical practice guidelines for the supportive care of children with cancer: A report from the Children's Oncology Group. Pediatr Blood Cancer. 2019 Jan;66(1):e27471. PubMed PMID: 30259647
• Raybin JL, Tong S, King N, Simms W, Giller R, Montgomery K, Hendricks-Ferguson VL. CVAD Homecare Management: Investigating the Use of a Digital Education Tool During Nurse-Delivered Instruction to Parents for New Central Lines in Children With Cancer. Clin J Oncol Nurs. 2019 Jun 1;23(3):295-300. PubMed PMID: 31099799
• Paw Cho Sing E, Robinson PD, Flank J, Holdsworth M, Thackray J, Freedman J, Gibson P, Orsey AD, Patel P, Phillips R, Portwine C, Raybin JL, Cabral S, Sung L, Dupuis LL. Classification of the acute emetogenicity of chemotherapy in pediatric patients: A clinical practice guideline. Pediatr Blood Cancer. 2019 May;66(5):e27646. PubMed PMID: 30729654
• Seelisch J, Sung L, Kelly MJ, Raybin JL, Beauchemin M, Dvorak CC, Kelly KP, Nieder ML, Noll RB, Thackray J, Ullrich NJ, Cabral S, Dupuis LL, Robinson PD. Identifying clinical practice guidelines for the supportive care of children with cancer: A report from the Children's Oncology Group. Pediatr Blood Cancer. 2019 Jan;66(1):e27471. PubMed PMID: 30259647
• Yang MJ, Whelan R, Madden J, Mulcahy Levy JM, Kleinschmidt-DeMasters BK, Hankinson TC, Foreman NK, Handler MH. Intracranial Ewing sarcoma: four pediatric examples. Childs Nerv Syst. 2018 Mar;34(3):441-448. PubMed PMID: 29285586
• Raybin JL, Hendricks-Ferguson V, Cook P, Jankowski C. Associations between demographics and quality of life in children in the first year of cancer treatment. Pediatr Blood Cancer. 2021 Dec;68(12):e29388. PubMed PMID: 34626456
• Montgomery KE, Ward J, Raybin JL, Balian C, Gilger EA, Smith C. Building capacity through integration of advanced practice nurses in research. Nurs Outlook. 2021 Oct 5. [Epub ahead of print] PubMed PMID: 34625275
• Hendricks-Ferguson V, Newman AR, Brock KE, Haase JE, Raybin JL, Saini S, Moody KM. COMPLETE (Communication Plan Early Through End of Life): Development of a research program to diminish suffering for children at end of life. J Pediatr Nurs. 2021 Aug 24. [Epub ahead of print] PubMed PMID: 34452795
• Barr EA, Raybin JL, Dunlevy H, Abuogi L, Jones J. Transition From Pediatric and Adolescent HIV Care to Adult HIV Care and the Patient-Provider Relationship: A Qualitative Metasynthesis. J Assoc Nurses AIDS Care. 2021 Mar 2. [Epub ahead of print] PubMed PMID: 33654006
• Green AL, Flannery P, Hankinson TC, O'Neill B, Amani V, DeSisto J, Knox A, Chatwin H, Lemma R, Hoffman LM, Mulcahy Levy J, Raybin J, Hemenway M, Gilani A, Koschmann C, Dahl N, Handler M, Pierce A, Venkataraman S, Foreman N, Vibhakar R, Wempe MF, Dorris K. Preclinical and clinical investigation of intratumoral chemotherapy pharmacokinetics in DIPG using gemcitabine. Neurooncol Adv. 2020 Jan-Dec;2(1):vdaa021. PubMed PMID: 32642682
• Montgomery KE, Raybin JL, Ward J, Balian C, Gilger E, Murray P, Li Z. Using Patient-Reported Outcomes to Measure Symptoms in Children With Advanced Cancer. Cancer Nurs. 2020 Jul Aug;43(4):281-289. PubMed PMID: 32559050
• Ward JA, Balian C, Gilger E, Raybin JL, Li Z, Montgomery KE. Electronic Symptom Assessment in Children and Adolescents With Advanced Cancer Undergoing Hematopoietic Stem Cell Transplantation. J Pediatr Oncol Nurs. 2020 Jul Aug;37(4):255-264. PubMed PMID: 32536321
• Nellan A, Wright E, Campbell K, Davies KD, Donson AM, Amani V, Judd A, Hemenway MS, Raybin J, Foreman NK, Rush S, Dorris K. Retrospective analysis of combination carboplatin and vinblastine for pediatric low-grade glioma. J Neurooncol. 2020 Jul;148(3):569-575. PubMed PMID: 32506370
• Raybin JL, Barr E, Krajicek M, Jones J. How Does Creative Arts Therapy Reduce Distress for Children With Cancer? A Metasynthesis of Extant Qualitative Literature [Formula: see text]. J Pediatr Oncol Nurs. 2020 Mar Apr;37(2):91-104. PubMed PMID: 31766942
• Raybin JL, Krajicek M. Creative Arts Therapy in the Context of Children With Cancer: A Concept Analysis. J Pediatr Oncol Nurs. 2020 Mar Apr;37(2):82-90. PubMed PMID: 31592707

Professional Memberships

• Children's Oncology Group, Past CNS Disease Committee Nurse, Supportive Care Guidelines Committee
• Association of Pediatric Hematology Oncology Nurses, National speaker
• National Association of Pediatric Nurse Practitioners (NAPNAP), Member

Practice Locations

• Children's Hospital Colorado
• University of Colorado Hospital

Specialty Information

• Hospice and Palliative Medicine (2017)
• Pediatric Hematology / Oncology (1999)
• Pediatric Nurse Practitioner, Primary Care, Certificate (0001)
• Pediatric Nurse Practitioner, Acute Care, Certificate (0001)